Two Years Post-RPAO

It has been a long time since I last wrote here, and an even longer time since I visited Dr. Millis. But today I made the old familiar drive up to Boston again.

The main purpose of my visit was to get a contrast MRI of my right hip now that it has been over two years since my March 16, 2009 RPAO. I am part of a study Dr. Millis is doing on cartilage regeneration post-PAO surgery -- the study will compare the MRI taken pre-RPAO with MRIs taken one year and two years post-PAO. Ideally, the MRIs will show that cartilage damaged by the poor alignment of the dysplastic hip will repair itself once the joint alignment has been corrected by the PAO.

One of my favorite qualities about Dr. Millis is that he will sit down and geek out with patients about the science of the surgery -- this time he sat with my mother and I and took us through all my MRIs, explaining how the contrast material indicates cartilage damage in the pre-surgery image, and then tracking the cartilage repair across the two post-surgery MRIs. Today's MRI showed no cartilage damage at all, indicating that my body has repaired all of the painful damage my hip had suffered prior to the surgery. It is an amazing result -- two-and-a-half years after my diagnosis, I am truly "cured" of hip dysplasia as well as the damage it caused.

Of course, today's MRI merely confirmed on a medical level what I already knew to be true from my own experience. For the last year I have been active with tennis and horseback riding and long walks around New York City, limited only by stamina and blisters. Most of the time I don't even think about my hips, but from time to time I am still struck with wonder and gratitude at the amount I can do, and the pain I don't feel.

Eleven Hours of Tennis

Every part of my body hurts -- except for my hips! This past weekend I went to tennis camp in the Catskills. Ideally, you play 11 hours of tennis over the course of the two-day program, but going into it I wasn't sure how much I would be able to do.

Prior to my screw removal, I was up to playing tennis three times per week, and I'd played two consecutive days in a row, but every time I'd played it had only been for an hour or two total. Tennis camp was a whole new level of intensity.

And it was fantastic. I played every minute of the eleven hours, not holding myself back in any way, and my hips did not hurt for one second. Not the bones, not the small muscles inside, not the incision. My hips felt like there had never been anything wrong with them.

The rest of my body is another story. I am pretty sore! But it is a good feeling of having worked hard and pushed myself, and my tennis definitely got a big boost from all the instruction and practice, so it is all worth it.

New York City tennis season has officially started now that Central Park is open, and I am ready for a great summer of tennis with my new, sensational hips. Thank you Dr. Millis!

Screw Removal

I am now officially hardware-free! Yesterday I had the six screws from my LPAO removed in an outpatient procedure. It was relatively quick (I think it took an hour in OR) but I got general anaesthesia anyway. There was the option to just be heavily sedated but honestly I did not want to hear and feel the vibrations from the drill, no matter how much happy juice they were giving me at the time.

This time when I came out of general anesthesia I was strangely restless and impatient, like I wanted to get out of there, I was bored, I wanted to read, I wanted to move, want want want, I don't know what I wanted but it was everything and nothing. Strange. But better than shaking and freezing like last time.

I came to with several layers of bandages over the incision, and not a lot of pain in the incision area: maybe a 3 on the pain scale, which lowered to a 2 once they gave me some more morphine.

They discharged me relatively quickly; I was only in the PACU for about an hour and then we got on the road on our way home. During the three-and-a-half hour drive home from Boston I was relatively pain-free, but I was very nauseous the whole way and did get sick once on the side of the road. I hadn't even been nauseous after either of my other procedures, so I think this was more the result of a long car drive on top of the general anesthesia and morphine.

Today the incision site is quite painful; more painful than I expected it to be. I'm taking the oxycodone as often and as much as I'm allowed to and it doesn't seem to be making a dent.

Dr. Millis told me I shouldn't play tennis or really do any activity for two weeks after the screw removal, and I'd kind of hoped that was a conservative estimate and I could be back to at least walking to work and working out, if not tennis, by mid-week this week. But at the rate my incision hurts now, there is no way that is going to happen.

That is depressing, because tennis season starts on Thursday, and I've been playing more and more tennis recently to get ready for it. In the last couple of weeks it has been up to three times a week and my hips have been feeling great. So taking two weeks off now is a big setback.

But I suppose I shouldn't complain -- I'm lucky to be on the courts again so soon anyway, and at least now I am 100% done with all my surgeries. One year and five months after my initial diagnosis, both PAOs are done, all the hardware is out, and I know I'm going to be feeling better than I have in years as soon as this incision heals. And that is a good feeling.

Tennis!

On Sunday I played tennis for the first time post-LPAO! It felt great to be back on the court, and both my hips felt great before, during and after.

I played doubles for two whole hours, and while I didn't go for any crazy gets, I didn't hold myself back too much either. Obviously I was a bit rusty, but for the most part I felt really good and like I am ready to start playing regularly again. Yippee!!

I have been doing a lot with my hip lately: walking to and from work (it is only 20 min. each way), Pilates, spinning, and seeing my trainer twice a week. All that work has obviously built up the muscles quite well, and the spinning has been improving my cardio quite a bit.

So fitness-wise, things are going very well. Tomorrow I am going up to Dr. Su's office to get my 12-week post-op xray of the left hip, so we'll see how the progress is going on the inside as well. Dr. Su is a hip specialist at the Hospital for Special Surgery here in New York, and the doctor who first diagnosed my hip dysplasia and referred me to Dr. Millis. I'm having my xray done there so I don't have to drive all the way up to Boston, and so that Dr. Su can see the end result of his initial diagnosis.

Eleven Weeks Post-LPAO

My hip has been doing spectacularly well for the last week or so, with no significant episodes of pain or limitation at all.

Prior to that there was unpredictable, variable pain that seemed unconnected to my activity level. The pain would appear without warning, sometimes in the front of the hip, sometimes in the back, on the ischium, and sometimes, more rarely, on the outside of my hip. It would last for a random amount of time, and then it would disappear, seemingly without cause.

For example, one morning I woke up and had pain with every step I took with my left hip, for no apparent reason. I hadn't pushed the hip the day before, or done anything out of the ordinary. I rested all that day, hoping that would help, but the hip continued to hurt in what felt like the small muscles surrounding the hip, as if I'd overdone it walking or something. Which I hadn't. The pain lasted into the next day and then, as suddenly as it had appeared, it disappeared. For no reason. Frustrating.

The last episode of that inexplicable pain was about a week ago. Since then, my hip hasn't complained at all, despite an increase in my walking, intensification of my workouts with my trainer, and the addition of both swimming and spinning to my regimen. In fact, my hip has taken all these challenges in stride (pun, sorry) and has felt great.

So I don't know how to explain any of it. All I can report is that I've been doing more and more with my hip and it has been feeling good. My right hip, which is now ten months out from its PAO, feels great as well. My fitness level is improving markedly and I'm starting to feel like my old self again.

Next week I will get another x-ray taken and I'll have more to report once Dr. Millis has commented on it.

Nine Weeks Post-LPAO

After my RPAO, I started my nine weeks post-op entry jubilant about finally being allowed to wean myself off crutches. Juxtapose that with today's entry, nine weeks after my LPAO and here I've been walking for three weeks already!

Well, that is a bit of an exaggeration. I only ditched the crutches totally about two weeks ago, but since then I've been walking more and more, trying to get my strength up. I went to Europe right after Christmas and although my hip tired easily, for the most part I felt pretty good through airport transfers, post-holiday sale strolls, and museum visits. I even took a 10 mile bicycle ride one ambitious morning.

I can't say my hip was pain-free -- when it got tired, it definitely got sore, but I was good about making sure I always had an "escape route:" a cafe to rest in, a subway to jump on, a cab to hail, etc. so I never got stuck anywhere having to push my hip past its limits just to get home.

Now I'm all moved back into my apartment in NYC, my office at work, my normal life. Well, almost normal. I still don't think I can make it far enough to walk to work yet. And I definitely need some time before I can play tennis again. But I'm progressing really fast and I'll get there soon enough. Who wants to walk to work in these sub-zero temperatures anyway?

Seven Weeks Post-LPAO

I went up to Boston today for my second post-LPAO appointment -- a little early, at only seven weeks post-op, but that seemed apropos given the quick pace of this hip's recovery.

In the last few weeks, I've been mixing in more and more walking, but still keeping the one crutch with me for longer excursions or (given the current weather conditions on the East Coast) inclement footing. Needless to say, Dr. Millis and the team were pleased with my progress, my range of motion, my strength and my nearly-perfect walking.

I say nearly-perfect because, as physical therapist Jaime pointed out, I need to do some specifically targeted exercises with the thera-band to get back to 100% on the left side. So I've got those movements as an assignment. Other than that, though, I can continue with my bike riding at the gym, and continue to increase my walking as it feels comfortable and as my hip muscles strengthen.

Essentially, I am now where I was at the end of May with my RPAO -- which puts my left hip recovery about a month ahead of where my right hip recovery was at this stage. So there's my Christmas present!

Progress Report

Officially five weeks post-LPAO now, and there is more good news to report.

I have been to the gym three times since I got the green light to start last Tuesday. Getting on that bike and moving my blood around feels so good after a month of basically being sedentary. I have fewer restrictions on my movement than I did at this point last time, plus I got started going to the gym the day after I got permission from the doctors, so the mood-enhancing effects have already begun.

At the gym I have been riding the stationary bike for 30 minutes on the "random" setting, with a highest resistance of about 6-8 (out of 25 available on the bike). It may not sound like much but after my RPAO I had to start at zero resistance for 10 minutes, and work up from there. Plus, my cardiovascular endurance totally disappeared during my month of the Couch Workout, so 30 minutes at level 6 has me breathing hard enough already! But I'm looking forward to improving on that front as well.

I've also done some upper body work at the gym (although with all the crutching, I don't think I've lost that much strength) -- lat pulldowns, rows, chest presses, etc., but I've been pretty lackadaisical about it so far; must step it up a bit.

Interestingly, I just realized that I -- completely coincidentally, without having gone back to check my post-RPAO entries -- quit my pain meds at exactly the same time post-LPAO *to the day*. Amazing! So yes, I quit my pain meds today, exactly the same way I did at the five-month mark last time: I woke up with very little pain, and figured, hey, why not give it a shot?

One of the reasons I decided to go off the pain meds now was that I wanted to feel pain as the warning sign it is. Now that I am putting more weight on the left leg, and using one crutch at times, I don't want to push things too fast simply because I've numbed the pain and don't know that I am putting too much strain on the joint. But so far, so good. What pain there has been is minimal and tolerable and subsides if I give my hip a rest for a while.

So now I am pharma-free, except for aspirin (allowed to quit next week), fiber, and calcium. I sleep well on both sides. My incisions look great. My only niggling problem is that tight spot on my spine where the epidural was, although I don't feel it nearly as often now. If it is not gone by next week I'll let the team know.

One Month Post-LPAO

Today was my one month post-op appointment with Dr. Millis and the team. I already had a feeling my left hip was healing faster than my right hip had earlier this year, but my appointment today confirmed this.

I got the standard x-rays before seeing the team: supine AP and false profile. When I went over the films with Erin, she pointed out the areas of bridging -- where the bone had begun knitting to fill the cracks. My bones have done a spectacular amount of knitting in the past month! The cut in the illium was barely visible (except the big gap to fill caused by moving the acetabulum), and the other two cuts were bridging nicely. I'll try to get the films so I can post them. Both Dr. Millis and Erin were impressed.

I reported that I am down to two Percocet a day, one in the morning and one before bed; Valium occasionally as needed. That strange pain (that I thought might be a ligament) is completely gone now. I still take one Atarax at nighttime. I am sleeping much better now, able to sleep comfortably on both sides now, as well as on my back. I still have the strange pulling feeling at my epidural site, so Erin told me to let them know if it got worse or continued much longer.

Erin did my range of motion tests and they were good as well. My hip can bend below 90 degrees towards my chest now and rotation was good. My straight leg raise was high and strong, too, which I think is because I was in good shape going into the surgery. I think if the muscles around your hip are strong going in, it can only help in the recovery.

When it came to movement, I admitted that I'd been putting more weight on the leg this past week. Erin had me walk with one crutch and then a few steps without crutches. One crutch felt OK but without crutches I definitely felt that sinking feeling you get when the leg is not ready to take the weight yet. So I am officially allowed to start using one crutch, but always keep the other around in case I need support or my gait becomes uneven "like a penguin," to quote Erin. Great news, huh?

I am allowed to go to the gym now, with far fewer restrictions than I had post-RPAO. I can do the stationary bicycle at zero resistance to start, as usual, but I can increase duration and resistance faster this time. And I can do any upper body and core exercises I want, provided my hip feels fine when I'm doing them. This is great news because the faster I can start getting back into shape the better; I'd rather not lose as much fitness as I did after the right hip surgery.

It is amazing how much different this recovery has gone compared to my recovery in March. Other women have said that one hip is always worse than the other, but you never know which one will be the bad one. Imagine if this one had been worse than the RPAO! But luckily it is going fantastically so far, and I'm feeling really great. But I doubt I would have appreciated the speed and ease of this recovery as much if I hadn't had such a rough go of it in March.

So good news overall, but there's still a lot of healing to do. I am going to try not to get overexcited about this progress, and continue to take it slow and steady so I can keep knitting away as well as I have been. I return to see Dr. Millis and the team in four weeks (Dec. 29), but I'll update here before then, to report on how the new weight-bearing and gym visits are going.

Three Weeks Post LPAO

It is now three weeks post-LPAO. At this point last time I had a giant leap in progress. This time, progress on the left hip is just steady and slow. I think the difference (again) is that Dr. Millis didn't have to go into the joint capsule on this left side. The first three weeks of horrendousness after my RPAO probably had a lot to do with the joint capsule having to heal up and stabilize. So while my first three weeks post-LPAO felt better than my first three weeks post-RPAO, I think the recoveries are pulling even now.

PAIN and its MEDICATION

My pain is generally very low. Most of the day I am in little to no pain. I usually wake up with pain around 4 or 5 in the morning, but once I take a Percocet I can make it quite a while until the next one. That ligament (or whatever it is) is still bugging me from time to time, but not nearly as much as it was last week, when it hurt at every step. Now it is just an occasional pinch from time to time.

Sleeping is still not fantastic, but is getting better. I still wake up a few times a night when I have to roll over. I can comfortably sleep on my right (non-op) side for long stretches at a time. The pain gets worse towards the morning when the previous night's bedtime Percocet has worn off. Last night, in a fit of madness, I tried to roll onto my left side. Ouch. I'm not quite ready for that yet.

I am gradually stepping down on the painkillers. This past week I discontinued the Oxycontin altogether and I have been averaging 4 Percocet/day (day being 24-hour period, in this case). I am still taking the Valium as needed.

I haven't stopped Atarax but I think I will this coming week. My hospital rash is long gone and the itchy-red-spots are pretty much gone as well. Just some residual itching here and there.

MOVEMENT

Movement is generally the same as last week. Now that the ligament pain (or whatever it was) has let up, I am less reluctant to crutch around. I have even left the house for dinner at a restaurant and other adventures. I am good on my crutches (after much practice!) and I am strong from my pre-surgery fitness level, so moving around is not a problem when the ligament is not bothering me. Some chairs are still uncomfortable, but I can find ways to sit to minimize the pain.

Because I seem to be healing so fast, I have been entertaining delusions of perhaps getting off crutches earlier this time. But I think that is probably not going to happen. I have been ahead in the healing game with this PAO because of the joint capsule -- but cut bones are still cut bones and they are going to take as long to heal on the left side as they did on the right. So I'm just going to be in this I-feel-fine-I-just-can't-walk limbo phase for longer this time. Great.

INCISIONS

Both my incisions look great: click the links for the pictures. The one that really matters is the right side, since that will be my permanent scar on that side. On the left side they will open the scar back up again to get the screws out in a few months anyway, so who cares what it looks like now.

MOOD

My mood is good; mostly stressed. I have had to work a lot during this recovery and it is leaving me with less time to read and relax than I had during my recovery this spring. It is also draining. In the evening I feel like I am going to collapse from exhaustion once I log off work. Another reason I am not getting as much reading done this time around. Happily there's the holiday weekend coming up so maybe I can get through a book.

Next week is my 1 month post-op in Boston. How the time flies as I limp along behind it.

Two Weeks Post-LPAO: Movement

One significant difference from my recovery in March is movement. It is very obvious that this surgery was less invasive and less "destructive" than my RPAO in March. At this point in March I was still quite limited in my hip joint movement, much more so than I am now.

I have quite a bit of leeway in how I can move my left hip without pain. I can straighten it and bend it far more than I could at this stage with my right hip. Of course I cannot lean down to put on a sock on my left leg, or even smear Sarna cream on my itchy left calf, but I can make a more acute angle with my left hip than I could with my right two weeks post-RPAO. I can cross my legs at the ankles (right over left, of course). My left hip also still pops and clicks (painlessly), though more quietly than pre-surgery. (My right hip never popped again after my RPAO.)

The fact that Dr. Millis did not cut any muscles during my LPAO is also noticeable. Although it is weak, my left hip flexor does actually work. I can use my left leg muscles to move my leg around a little bit. At this point in March I could not move my leg at all without someone to help me lift it and replace it in a new position.

All of this should mean increased mobility, maybe even an excursion outside the house (!), but unfortunately the pain I have been having while crutching has been quite a deterrent to getting up and crutching around. So mostly I stay seated or supine, unless I really *have* to get up.

I still need help getting into and out of the shower, because there is a lip, but I can shower on my own. I have a shower chair but I use it more for support than for sitting while I'm showering.

I don't use a special toilet seat -- my right leg is strong enough to lift me from most seated positions even when there is not really enough support for me to use my arms to assist.

I am comfortable sitting in a soft armchair, as long as I can slouch a bit or put my legs up on an ottoman. Dining room and kitchen table chairs are less comfortable, mostly because they involve eating (therefore leaning over the table) and that causes overly-acute-hip-angle problems. Same problem with my office chair (and leaning over the computer). I try to solve the angle problem by sitting on the edge of the chair and angling my thigh down towards the floor, with my foot under my chair, but it is not very comfortable.

Sleeping is the one area in which I am actually doing worse than I was at this point in March. I can still only sleep on my back, with pillows under my left knee. It is not terribly comfortable and when my lower back (what I assume to be the sacrotuberal ligament) hurts, it is not comfortable at all. I am desperate to switch positions during the night, and I have tried, but I still can't sleep on my right side. My left hip and that spot on my back ache when I try to do that. In comparison, two weeks after my RPAO in March I could already sleep happily on my non-op side.

Two Weeks Post LPAO -- Pain & Itching

Today is two weeks from the date of my LPAO, and I have been home from the hospital for a full week. It has been a bit different than my first week home after my RPAO, which you can read about here and here.

For one thing, my activity level my first week home after this surgery was much higher, and not by choice. After my RPAO, I spent the majority of my first week at home sedentary, reading or sleeping in a couch or bed, moving only when necessary. This past week, I had to work full time the whole week. I was, of course, working remotely from Connecticut, not going into the office. But still, that meant sitting upright in a chair at a desk most of the day, and moving around a lot more than I had done in March. Having to work couldn't be helped, but I do think I could have used a bit more sedentary reclining last week.

My pain has been generally well-managed, except for sometimes sharp pain in two specific places. In March, what pain I had would migrate, popping up in different places every time. This time, the pain is localized in two places: the back of my hip joint (it feels like deep inside where my left buttock meets the top of my thigh, maybe the cut in the ischium?), and above my tailbone, on left side, just above my left buttock.

The former pain has lessened over the course of the week and by now is pretty much resolved. The latter pain is much more common and more severe than the former. That pain above my left buttock is almost constant when I am crutching (each time I take a "step" with my left leg, I feel pain there) and can ache while I am sitting in chairs or lying down, especially if I have just been crutching. I have no idea what it is, it doesn't seem to be located near the surgery site at all. I've got an email in to Dr. Millis asking about it.

My best guess is that there is something going on with the sacrotuberous ligament. That would make sense since one of the hamstring muscles originates from that ligament. Maybe when I step a certain way and activate that muscle, it pulls on the sore ligament? Now why the ligament is sore in the first place is a totally different question. Unless of course it is because that ligament connects the sacrum to the tuberosity of the ischium -- the ischium, of course, being the potential source of my other pain described above and one of the bones cut during a PAO. Gosh, surgeons must love it when patients play doctor using Wikipedia.

Moving on. Unlike on my right side after my RPAO, there is no numb spot on my left thigh after my LPAO. Probably because they didn't have to move the nerves around on the left side.

My incision on the left side is fine. The dressing itches sometimes but not too often. It is not generally tender, although earlier in the week it did feel a bit bruised if I pressed gently on my hip near the top of the incision. We have not changed the dressing on the left side. I imagine it will come off some time this week.

My incision on the right side (where the screws were taken out) does not bother me at all. Obviously it was a much shallower cut than the left side. Its dressing came off on Saturday, but the steri-strips remain.

In the hospital I did have some swelling in the hip area on the left side, and my left foot and lower leg swelled up like the blueberry girl in Willy Wonka for a while. But all that swelling is gone now.

My current pain medication regimen is:

-- 1 Oxycodone every 5 hours during the day
-- 1 Oxycontin twice daily
-- 1 Valium as needed during the day
-- 1 Oxycodone and 1 Valium kept at bedside if needed for pain during the night

It is more pain medication than some other PAO women have taken at this point in their healing, but as I wrote a few days ago, I am not being a sissy; I just seem to need more pain medication than most. I am not worried; I will step it down when I am ready, just as I did in March after my RPAO. But currently, especially with that frequent upper buttock pain, I need pain relief.

As I explained in March, the Oxy painkillers do not make me feel mentally foggy in the slightest. Only the Valium makes me a bit scatterbrained and sleepy, so I never take it when I am working, or trying to concentrate on something important like Gossip Girl.

My horrible skin rash has subsided. Probably primarily because I am not laying in those hospital sheets anymore. Earlier in the week I was applying the prescription steroid rash cream twice daily, but since the rash seems to have been vanquished, I've essentially stopped with them now.

Alas, when one itch dies, another is born. Again I am plagued with the itchy-red-spots problem I had in March, probably a side-effect of the pain medications. I am taking Atarax (thrice daily) to combat the itch, and I also try not to scratch. I carry around Sarna lotion and put that on every time I have an urge to scratch. Needless to say, I am very moisturized. It seems to be working because I feel like I have a few fewer itchy red spots than I did mid-week.

I still take aspirin, but I never wear my TED stockings. No one told me I had to. I wore them on the car ride home from the hospital but that was it.

Recovery Day 5 -- Homeward Bound

Among the many uncomfortable things about sleeping post-PAO is the fact that you can only sleep on your back: still and straight like a mummy (with pillows under one leg). Last night I somehow got it into my head that I might be able to sleep on my right side for a while. Surprisingly, it did not work at all. Neither my left hip nor my right appreciated the change. My left (PAO) hip just ached and my right hip's screw-removal incision pulled and pinched. Position change fail.

Dr. Kim came to visit me in the morning. I had actually never met Dr. Kim, so that was a pleasant surprise. He checked my dressings and asked about pain and had me wiggle my toes and all the rest of the typical morning-rounds check up.

At 9:30 Michelle from PT came to get me. I remembered her from March, she is a great PT. She helped me out of bed (an activity which is going more and more smoothly each time I do it) and wheeled me to the PT room. I walked the parallel bars (without help moving the left foot this time) and then got on the crutches to show I could handle them on a flat surface and on stairs -- two prerequisites for my discharge. All of this went very well today. It is such a mystery why sometimes physical things can be so hard and then suddenly so easy.

Obviously I spent two and a half months practicing crutching earlier this year, so that could be the reason for the crutch success. It went well, except that I seemed to be favoring my operated leg a little too much. As I stepped with my left foot, Dr. Millis kept saying "more weight on that foot!" I'm supposed to have 1/6 body weight on the left foot as I step on it, but that is a hard thing to gauge.

Having passed the PT tests, there were just some loose ends to tie up before getting me out the hospital door. There was a humorous moment sizing my TED stockings -- first they gave me size large, regular length stockings. They were loose and too short, like mid-calf gym socks. My mother kept saying I needed LONG stockings because I am tall, and size medium, so they'd be tight enough. A couple of attempts later what I ended up with were tight thigh-high TEDs. They looked sort of trampy, in a way.

The drive home was much better than it had been in March. I was in less pain, perhaps because the surgery had been less invasive so the little bumps and swerves of driving were less disruptive? Or maybe I was just better packed in with pillows and pain pills? Who knows. Another mystery.

By the time we got home to Connecticut three and a half hours later, I was in a lot of pain. While driving, we'd overshot the timing on my oxycodone dosing and so the pain had broken through big-time. I was at 7 or 8 when we got home, just moaning and staring blankly until the pain came back down.

My parents helped me lurch myself up the 13 stairs to my bedroom, and finally I fell into a blessed night of sleep -- in my own bed, without wires, beeping monitors, vital sign checks or rude awakenings by crowds of interns.

Phase One complete. Time for the long Phase Two.

Recovery Day 4 -- Wireless!

Last night was a terrible night because of the rash. Even though I finally got some steroid creams last night, the itching and discomfort was hardly vanquished, and I had to keep calling for Nubain and Benadryl in between my steroid cream applications.

This morning I wanted nothing more than to leap out of bed, have a shower (preferably stripping away several layers of rash-infested skin in the process) and then marinate myself in steroid cream. Last time I had this operation, I absolutely dreaded getting out of bed because it was so painful and logistically difficult. I think the rash is worse this time around, but I know that getting into and out of bed is somehow much less difficult, so it makes sense that I'm much more amenable to getting out of bed.

Nonetheless, I spent most of my morning in bed, working. So much for taking off from work for two weeks after surgery! Dr. LaReau stopped by to check on me, I ate some fruit salad, time passed.

At 10 my catheter came out. With that, I was wireless! No more leads, IVs, drains, nothing. Just me and my rash.

Finally Kimber came for PT, and it was time to get out of bed again. It went better this time; I was more confident with the limits of what I could do, and I also trusted Kimber more. Once up and in my wheelchair, I was taken to the PT room to try walking on the parallel bars. Again, I was pretty confident about it -- after all, this had been a less invasive surgery and I had already done this learning-to-walk-again thing before.

As all you proverb fans probably guessed, it went terribly. At least I felt it did. Just like in March, I couldn't slide my op-side foot forward to save my life. I was so disappointed and confused. This time they didn't cut that muscle! It is supposed to work! Why can't I move my foot?! Kimber helped me slide my op-side foot forward for each "step" but it just felt like cheating. I couldn't do it myself. The whole endeavor hurt my hip and my pride and I felt like a sad failure. I had thought it would be so much easier than in March and it wasn't.

At least when I got back to my room my sheets were changed. But I didn't get to take that long-awaited shower because (of COURSE) I got the only room on the floor with a bathtub instead of a walk-in shower. Perfect. So I had to wait for a new room to open up so I could switch rooms to take a shower. Which meant getting back into bed to stew in my own boiling skin for a few more hours.

I have been on oral pain medication since the epidural came out yesterday, but I still feel like they are not yet covering my pain properly. There are "gaps" where the pain comes through and when I ask if it is time for some more medicine I end up having an hour or more to wait.

Just like in March, I feel like I always have more pain than I "should" have. I know it is probably in my head, but I just get this vibe from people like they think I can't possibly be in pain when I am taking "so much" medication. But I am not exaggerating my pain. When I ask for medication, it is because the pain is at a distracting level, like 5 to 7. Actually, earlier today, when I told one of my nurses my pain had returned and asked if I could have some more medicine she looked at her watch and sort of sighed disapprovingly and said "you are already on a lot of medication..." It sucks to feel simultaneously like a sissy and a junkie.

At around 15:00 two doctors from dermatology came to look at my rash. They didn't take any photos so I guess they were "the deciders." After some chin-stroking they presented exactly no new ideas and no new solutions. So once again dermatology comes up a day late and a diagnosis short. Give me my steroid creams and go away now please.

In the afternoon I got out of bed again for a second session of PT with Kimber. Needless to say, I was not feeling positive about it, but since I had to get out of bed to get my shower anyway, I figured I might as well hit the parallel bars along the way. For some reason, this time it all went much better. Kimber still had to help me move my left foot forward, but at least it felt like I was contributing this time.

And so I earned my reward. Ahh, a shower and a steroid cream body mask. What a spa treatment. After that I was feeling (and looking) much better, so when Dr. Millis stopped by this evening he was happy to see me looking revived. He said everything is going so well that I might even get discharged tomorrow afternoon. The only things left on my to-do list are final x-rays and showing PT I can climb stairs on crutches. And we all know I can do that. Right?

Recovery Day 3 -- Dermatology Phones it In

This morning my epidural was turned off at 6:00 and I was started on the oral medication cocktail of oxycontin, oxycodone (Percocet) and Valium.

At 7:00 Dr. LaRue came in to check my dressings and I showed him my growing rash. The itching had increased throughout the day yesterday and I could feel that the nubbly, swollen heat rash had begun again, just like last year. ::Sigh::

So far the itching caused by the pain medication has been treated with Nubain and Benadryl, and we've been trying to prevent any rash or further skin irritation with frequent sheet changings and sponge baths, but there is only so much that can be done. I think the rash was inevitable.

As soon as I mentioned the onset of the rash, I was given some over the counter anti-itch cream, but I couldn't get anything stronger until a dermatologist looked at the rash. My experience from last time told me that this would not be happening with anything resembling efficiency.

At 8:00 pain services came again (smartly this time with only one intern in tow) to check on my pain levels with the oral meds. My hips were holding steady between about 1 and 4, depending on movement and time since last dosage.

After all that frantic morning activity I fell asleep until 11:30. I ate a fruit salad for lunch. That is worth mentioning because back in March I had no appetite at all in the hospital and I barely ate anything other than broth until about Friday or Saturday of that week. This time I ate fruit salad the day after the surgery and have eaten a little bit each day since then. Not a lot of food, but a soup here, some fruit there, etc. And that must be good, right?

After lunch, I signed back on to work for a few hours to fight some fires.

Speaking of fighting fires, by early afternoon the monstrous red blotchiness was in full bloom across my back, flanks, buttocks, and down the backs of my legs from my thighs to calves. It had even begun creeping around the front of my left upper thigh and across my stomach. All the while itching violently in hot, angry welts. Although it was clearly the same rash I'd had while recovering in the hospital in March (and therefore my chart already listed all the appropriate steriod creams necessary to soothe it), a dermatology consult was requested.

Meanwhile, Kimber from PT came to help me get out of bed for the first time since my surgery. It went relatively well, despite being herky-jerky and a bit nerve-wracking, and so I spent most of the afternoon sitting in a recliner chair enjoying a break from my hospital bed and waiting for the dermatologist to show up. And waiting. And waiting.

At 18:00 Dr. LaRue stopped by to check on me and took a look at my rash, which was by then much worse than when he'd seen it in the morning. He said he'd personally order up all the dermatology meds that had been used on me in March, and would also make sure dermatology was on its way.

I literally sat in that chair for three hours waiting for dermatology to show up and tell me I had a rash (surprise!), and prescribe me the medications I'd already taken a year ago for the same condition, and that Dr. LaRue had already ordered. Not only was the dermatology consult disrespectfully tardy, but the person dermatology ultimately sent was an intern who just took photos of my rash and threw out a couple of inapplicable but complex-sounding diagnoses that ultimately translated into things like "blocked sweat glands." I suppose blocked sweat glands are what led me to be steweing in a pool of my own sweat for the last few days, right? Eventually the dermatology intern went into a back room to call her attending so she should get coached on what to say to us. Impressive. At least I should finally get some steroid creams out of the ordeal.

Overall, today was physically miserable because of the discomfort and frustration due to the rash, but from a strictly orthopedic perspective it was a great day with good pain control during the switch from epidural medication to oral medication, and a successful adventure out of the bed and into the chair for a few hours. Moreover, with the removal of the epidural, I also got to remove all the leads monitoring heart rate, breath rate, etc., so that means a night free of strangling wires and beeping machines and one more step towards wireless freedom.

Recovery Day 2 -- Awakened by Pain and PT

After a calmer-than-usual night of sleep, I was awakened by Dr. LaRue at about 5:30, as he stopped by during his rounds. He took the drain out of my wound. The entire hip/flank area on my left side is hugely swollen and is making me feel enormously fat and distended. I don't recall my corresponding flank being so swollen in March. It almost made me wonder if the drain should stay in a bit longer -- isn't there so much more fluid in there to drain out? But I guess Doctor knows best.

My pain was still at zero this morning, which is even more impressive considering my epidural is set at 8.5 mL/hr this time as opposed to the 12 mL/hr it was at for my right hip in March. So everything is still coming up roses after this second PAO.

With my pain so controlled and my arms so strong, my nurse and I took advantage of the opportunity to give me another sponge bath and change my sheets again. Wow, the hygiene! I will say, though, despite all the prophylactic sheet changing we are doing, my back and flanks are still hot and sticky and pressed into damp sweaty sheets a lot of the time, so I worry that the heat rash may make a reappearance.

Dr. Millis stopped by to remove part of my dressing as well -- the thick ace bandage wrapped around my entire midsection and left thigh. Once he cut that thing off I felt fantastically better. The bandage had been the source of a lot of itching and discomfort so far, and removing it made me far more comfortable. I still had the two bandages over the incisions on either side, but at least the thick itchy girdle covering it all was gone.

After all that activity, I was exhausted, and so I napped from 10 to 12:30, turning away PT's attempts to rouse me into activity in the late morning. I already find PT's in-bed exercises a bit silly, and I am certainly getting tired of the way everyone in the hospital seems to think it is OK to rouse me from my most peaceful slumber for whatever little test (or intern lecture) they have in mind. I thought I read somewhere that adequate sleep (and hydration) were the absolute best medicine?

When I awoke from my healing sleep, I had another headache. (So much for "absolute best medicine, I guess.) I don't usually get headaches, and I don't remember getting any during my hospital stay in March, but this time around I've been having low grade headaches for a lot of the time. Tylenol has only helped about 50% of the time.

I also had another new pain when I woke up from my nap -- my left hip. The hip pain that had been held a zero this entire time had suddenly broken through, and now my left hip ached at about a three or a four -- enough to cause discomfort while lying still, and to cause me to avoid moving the hip if possible.

Nonetheless, I (grudgingly) went through the in-bed exercises with PT when they came back in the afternoon, and I had to postpone my pity party even longer by spending the rest of the day logged on to work (!) taking care of various crises that had popped up in the office since Monday. I was supposed to be able to take time off from work for this surgery, but unfortunately the schedules in my current cases, and the intricacy of my involvement in them, has made my complete absence from work impossible. I can't say that stressing over the projects (and our firm's shoddy remote intranet connection) is helping my healing, but there is not much that can be done about it, so I'm doing what I can, given the circumstances.

Dr. Millis stopped by in the evening to see how I was doing. I told him about today's hip pain and my in-bed PT, he checked my incisions and sensation. He thought all was progressing just fine, but just as a bonus he ordered me to be transfused with a pint of the blood I'd donated autologously pre-surgery.

Recovery Day 1 -- So Far So Good

My first night in the hospital after the surgery was also a fitful, fractured one. Just as during my hospital stay in March, all my machines kept thinking I was dying in one way or another -- no heart rate, no pulse oxidation, no breath rhythm -- and so the beeping started and stopped all night and thus, so did my sleeping.

Every time I woke up I felt as if a large chunk of time must have passed since the last awakening... and yet the clock had hardly moved at all. I can honestly estimate that I woke up every half hour last night because of beeping, itching or a nurse taking vital signs.

One thing that did not wake me up was pain. The epidural has been handling my pain really well; I've been at a zero on the pain scale so far. This time I don't need a CPM machine, either, because apparently it is not necessary if the surgery does not go into the joint capsule.

My recovery so far is already going better than it did after my March surgery. Although I am still plagued with itch problems (as a side effect of the pain medication), having the use of both my arms to move my body around using the trapeze pole above the bed makes it possible for me to lift myself off the bed so my back can be cleaned, my sheets can be changed and towels can be laid underneath me. Hopefully all these precautions will help keep me cool and dry so I can avoid the heat rash situation that so plagued me in March.

So by midday today I was pretty content -- zero pain thanks to my epidural, clean sheets thanks to my two working arms and my lovely nurse, and itching suppressed thanks to Nubain. And so, contentedly, I slipped into a nap.

Only to awaken with a start some time later to find seven doctors crowded around the bed in my tiny room, staring at me, clipboards in hand. I fumbled for my glasses as one of them began to make introductions and ask me questions. Putting my glasses on did not help focus my thoughts; instead it only made me see in frightful clarity that I was indeed surrounded by doctors with clipboards staring at me, awaiting my answer to the pending question that, in my panic, I had not heard. I was paralysed and made idiotic by the surprise and my self-consciousness, and so when I did start talking, I answered most of their questions vaguely and certainly unhelpfully. By the time I regained (a scrap of) my composure, it was all I could do not to laugh when I realized six of the seven were obviously rigidly earnest interns trailing a resident on rounds. (Hey, I watch Grey's Anatomy, I know what's up.)

Not to be a diva or anything, but that bed-crowding scenario was NOT OK with me. I have no problem with a teaching hospital, or with a resident coming into my room with interns to use me as a learning example. But I do not want to be woken up from delta wave sleep to find seven people in lab coats clustered tightly around my bed, scribbling on clipboards. Once you get over the initial shock, it is creepy, and then plain rude. So I politely asked my nurse if in the future I could be warned, and if necessary, awakened, before a med school field trip took a tourist stop at my room.

Incidentally, the seven doctors with clipboards were from pain services, and after having a discussion that was ostensibly with me, but really amongst each other, they decided to put me on Narcan for my itchiness. Never mind that I was already taking Nubain and Benadryl, both of which were doing the job well for me.

A bit later, PT came by to do some exercises. This seemed as ridiculous to me this time as it had when they came the day after my surgery in March. What could PT possibly think they were going to get done with me one day after major hip surgery? Apparently not much: move your feet up and down, clench your buttocks together, etc. But I guess it is never to early to start moving again.

Unlike in March, this time I seem to have an appetite during recovery. Today I ate a fruit salad and a bit of soup, which seemed to make everyone happy. Drs. LaRue and Millis came in to check on me separately during the evening; both seemed satisfied with my progress so far. And of course Dr. Millis stopped the Narcan as soon as I told him it wasn't doing anything for me and that the Nubain had been working just fine, because he's logical like that.

Autodonations

Today was my second autodonation prior to my LPAO. This time my blood pressure was 120/80 and my hemoglobin (iron) level was 13.8. At my first autodonation (September 25) my blood pressure was 104/80 and my hemoglobin was 15.9. (Normal hemoglobin for women is 12-15 gm/dL of blood.) I'm taking iron supplements, of course, and trying to be as healthy and rested and hydrated as possible so my body can make more blood, but it can only work so fast. Luckily I have two full weeks until my next autodonation.

It is harder to stay healthy this time around, though. Maybe it is the season, but I have been a bit sick recently. The day of my first autodonation I felt fine, but my throat had been a little rough when I'd first woken up and I knew that I was on the verge of getting sick. And I did get a mild cold after the autodonation.

I hope the blood will be OK. When I woke up with a raspy throat the morning of the autodonation, I did some research; it seems the reason you can't give blood when you are sick is because you need that blood yourself to fight off the sickness -- not because your blood will be tainted with sickness. All I care about is that the blood I get post-surgery is not going to hurt me.

This morning I could tell that I was again on the verge of something -- this time it felt like I might have the stirrings of something in my left sinus (under the cheekbone). But again I felt fine going into the autodonation: no fatigue, aches or other signs of sickness. So we'll see. I will definitely ask Dr. Millis about this during my pre-op later this month.

It is hard to believe that I have less than a month left until my second surgery. I'm almost seven months post my RPAO and I've recovered so well -- I'm playing tennis twice a week, seeing my trainer twice a week, and I even did Pilates for the first time last week. I feel strong and relatively fit again (cardiovascular endurance is still not what it was). My left hip doesn't hurt at all, ever, and my already-PAO'd right hip is pain-free most* of the time. It is possible I've been pushing it a little too hard, though.

In a way, it is depressing that I have come this far and recovered so well, only to bring it all back to zero and have to start recovery all over again. But on the other hand, it is helpful that I now know the process of recovery, and the timing, and I know that if all goes as well as it did after my RPAO, I should be at this level of strength and recovery again by May. But then again, if I've learned anything from this process it is that recovery is impossible to predict, so really, anything could happen.

I am glad that I am having the second surgery in the winter. It is supposed to be a record-breaking cold and snowy winter this year, and now I have an excuse to sit inside by the fire for most of the winter. My parents' house in Connecticut, nestled in the snowy woods, is a great place to spend a winter.

I'm not there yet, though. I still have a month left. A month to tie up loose ends in NYC and at work, stay (get?) healthy and strong, and enjoy all the walking and tennis and Pilates that I'm lucky enough to be able to do in this brief interlude.

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*My right hip does hurt sometimes, and it is very confusing. I can't predict it or make sense of it at all. The pain is usually in the front, (which is where the labral pain was before), but the pain is not on impact like it was with the labrum. Instead it hurts when I lift my leg to step a certain way, or in a deep squat. I think it must be the muscles (especially the hip flexor) getting fatigued and sore. But what is taking it so long!? I have been working on my strength for months; all my other muscles are back in business. Why would the hip flexor keep hurting on and off for so long?

The other strange thing is that it doesn't seem to be correlated to my activity (as least as far as I can tell). Some days I step on the tennis court and am sore after 5 minutes of play. And some days (like tonight) I can play an hour and a half and not feel sore until the end. Why is that? Some days I walk to work and it is pain-free; some days I start to walk and it is sore as soon as I get out the door. Another question for Dr. Millis.

One reason might be that I am constantly pushing the envelope with my hip -- if I were not walking to work every day and playing tennis twice a week, it might feel totally pain free all the time. We'll see what Dr. Millis says later this month. Whatever it is, it can't matter that much, since I'm about to slow way down on the activity level for a couple of months.

Five Months Post-Op

At this point, my right (operated) hip is functioning at 100% for all walking-related activities. I no longer have any of the pain I described in my previous entry: no more twinges, no more aches, no more stripes down my thigh.

I can walk for long distances and durations without my right hip causing me to limit myself. Of course, I still get tired and footsore, but that is in a more general sense; I would have gotten tired anyway at some point!

I have now been seeing a trainer for about a month. My first training session was quite light and yet the soreness afterwards was wretched, mostly in my quads. I honestly had trouble walking and supporting myself with my quads for the first few days after the session, and I was in quite a bit of muscular pain. I suppose it was something I was just going to have to go through on the way to getting my quads back in gear, but I have to admit I wasn't aware that my quads were *that* weak!

Since that first session, my trainer has been stepping up the workouts in intensity and pace as my strength and endurance increase. I'd say my fitness is about 75% of what it was last year at this time, when I was playing tennis 5x per week and seeing a trainer regularly. I have some work to do, but obviously it feels good to be back on the path to fitness again.

For the time being, my trainer is being very careful with my (weak) hip flexors and with any impact exercises. So far my hip has not hurt during or after any of the training sessions. During one session my right hip flexor was definitely exhausted, but the joint itself did not hurt and the hip flexor in question was not even sore the following day.

On my own I am working on cardio on the exercise bike and to a lesser extent, introducing the elliptical machine. I am up to 45 minutes at about level 7 or 8 (out of 20) so that is still not hugely impressive on a cardiovascular level.

I am still not swimming. I know it is good for me but I just hate it and so I am still resisting it by making all sorts of excuses.

My numb spot still comes and goes but I never even notice it unless I am purposely paying attention to it.

My scar hasn't really made a ton of progress since the last time I posted a picture, and it still itches sometimes at the top, where that abscess was for a while, although the abscess has closed up and the scar is totally "healed" at this point. But scars do tend to keep that mauve look on me for a long time before they whiten up, so it is not surprising to me that it is essentially unchanged. And it doesn't matter anyway since Dr. Millis is just going to open it back up again in November to take the screws out on that side.

Speaking of November, my left hip (which is scheduled for surgery in three months, on November 2) still hasn't made a single peep of pain all summer.

Four Months Post-Op

In my last entry six weeks ago, I was just starting to walk again; now I am getting close to 100% with walking. Right now, I'd say I'm at 80% of my pre-dysplasia-pain ability to walk, and probably 100% of my ability to walk just prior to surgery.

As I wrote six weeks ago, at first even going on a half mile walk was exhausting. My leg muscles were in various states of soreness for several weeks, and my cardiovascular endurance needed work after two and a half months of limited activity.

My gait stabilized soon after I began walking. Once I got steady on my feet, I tried to increase my walking bit by bit -- at first just starting with the basic walk to and from the subway on the way to work (a few blocks each way), then little lunch-hour walks that I stretched longer and longer.

Eventually I was able to walk from my apartment in the Financial District across the Brooklyn Bridge to DUMBO, one of my favorite walks and one I was very glad to get back to! My longest walk so far has been a five-mile walk through London the weekend before last -- but I did pay for that with exhaustion and soreness for the rest of the day afterwards, so I haven't repeated the feat since.

I have had pain as I've been increasing my walking. It is hard to explain -- a lot of the time it is clearly muscle pain -- in the quads, glutes, calves, hip muscles -- but once or twice it has felt disturbingly like the old pain: twinges when my hip hit a certain way; that old "blister" feeling. The twinging/shooting only happens when I am *really* spent, like after that 5 mile walk for example. In London, my hip felt great during the whole walk (I would have stopped immediately had it started hurting), but after I came home and had rested on the couch for a while, I got up and felt really stiff with twingy pain in the operated hip on each step. I don't know what that means.

At times I admit I've been concerned that the surgery "didn't work" and the pain was the same old pain I had pre-surgery. But unlike the pre-surgery pain, the twingy pain I have now goes away quickly. The old pain would linger for several days until I'd stayed off my hip long enough for it to fade away.

Other times when my hip has been tired I've sometimes felt an ache, sometimes with the ache reaching down in a stripe down the outside front of my thigh. Of course that stripe could be some inner quad muscle complaining. In fact, I am not sure that the twingy pain isn't muscle related, too. I just don't know. But no matter what the pain, it has usually not lasted more than a few hours and it has always been gone the next morning. I figure it is just all part of building up the strength and endurance of my hip, and to stick with the rule to ease up if it hurts.

Jaime (physical therapist) did give me some exercises and stretches during my May visit, which I was to do daily. I tried to do them every morning and evening but I definitely did not do them that often. The stretching was, and still is, the worst -- my hamstrings were tight anyway before the surgery and now they are just ridiculously tight. It is hard to tell if there is even any progress with the stretching, but I suppose it is good for me no matter what.

I have also ridden the exercise bike sometimes during the past weeks. I haven't swum and I haven't done any anaerobic exercise, but that is just because I am lazy. I have resolved to remedy those deficits in the coming weeks.

As it stands now, I am back to being able to get around in the city at least as well as I did just prior to surgery. I can walk to subways, around the office at work, to errands at lunch hour, in parks on weekends, etc., all without pain (for the most part). I can walk briskly and bustle up and down stairs at typical New York pace. The last couple of nagging range-of-motion problems (not being able to really bend freely over my operated leg to put on a sock, for example) have finally fallen away.

I still have the numb spot on the outside of my thigh, but it comes and goes. Sometimes it feels like it is almost totally gone and then sometimes it comes back a little bit. I guess it is possible there will be some sort of strangeness there for the rest of my life, but no matter; I rarely notice it and am never bothered by it when I do.

I went up to Boston yesterday to see Dr. Millis and the team. (My last visit was back in May, right before my last entry in here.) I got x-rays that looked (to me) exactly like the x-rays from six weeks ago. Screws straight, cracks filled in, etc. Dr. Millis was pleased with my gait, flexion and strength and all seems to be improving according to plan. Weakest links are the right hip flexor and hip abductor muscles. (They probably would have been stronger if I'd been more religious with my PT exercises, hmm?)

I asked Dr. Millis and Jessica (physical therapist) about adding back some activities. Sadly I'm not allowed to start up tennis again, but I'm now allowed to hit against a wall or against a ball machine, so that's a start. Jessica said I needed a month or so before I could start adding any impact on my hip, so "real" tennis is still on hold.

No horseback riding still because it is "too jarring." (I'm surprised they didn't also say "and you could fall off!")

Thankfully I am allowed to start back up with a personal trainer again, so that should help with my motivation to get back in the weight room. I've already set up my first session for this Friday.

Another bit of good news is that I don't have to go back up to Boston until my LPAO pre-op appointment in October! I will communicate with the physical therapists and Dr. Millis via email to give updates on how I'm doing, but basically I'm free to enjoy my summer and fall.

Speaking of LPAO, my left hip is still pain-free despite the increased activity. I haven't had even a twinge from it even during the longer walks. That doesn't affect my decision to put it on the chopping block in November, but it is definitely good news for the enjoyment of my summer.