Nine Weeks Post-LPAO

After my RPAO, I started my nine weeks post-op entry jubilant about finally being allowed to wean myself off crutches. Juxtapose that with today's entry, nine weeks after my LPAO and here I've been walking for three weeks already!

Well, that is a bit of an exaggeration. I only ditched the crutches totally about two weeks ago, but since then I've been walking more and more, trying to get my strength up. I went to Europe right after Christmas and although my hip tired easily, for the most part I felt pretty good through airport transfers, post-holiday sale strolls, and museum visits. I even took a 10 mile bicycle ride one ambitious morning.

I can't say my hip was pain-free -- when it got tired, it definitely got sore, but I was good about making sure I always had an "escape route:" a cafe to rest in, a subway to jump on, a cab to hail, etc. so I never got stuck anywhere having to push my hip past its limits just to get home.

Now I'm all moved back into my apartment in NYC, my office at work, my normal life. Well, almost normal. I still don't think I can make it far enough to walk to work yet. And I definitely need some time before I can play tennis again. But I'm progressing really fast and I'll get there soon enough. Who wants to walk to work in these sub-zero temperatures anyway?

Three Weeks Post LPAO

It is now three weeks post-LPAO. At this point last time I had a giant leap in progress. This time, progress on the left hip is just steady and slow. I think the difference (again) is that Dr. Millis didn't have to go into the joint capsule on this left side. The first three weeks of horrendousness after my RPAO probably had a lot to do with the joint capsule having to heal up and stabilize. So while my first three weeks post-LPAO felt better than my first three weeks post-RPAO, I think the recoveries are pulling even now.

PAIN and its MEDICATION

My pain is generally very low. Most of the day I am in little to no pain. I usually wake up with pain around 4 or 5 in the morning, but once I take a Percocet I can make it quite a while until the next one. That ligament (or whatever it is) is still bugging me from time to time, but not nearly as much as it was last week, when it hurt at every step. Now it is just an occasional pinch from time to time.

Sleeping is still not fantastic, but is getting better. I still wake up a few times a night when I have to roll over. I can comfortably sleep on my right (non-op) side for long stretches at a time. The pain gets worse towards the morning when the previous night's bedtime Percocet has worn off. Last night, in a fit of madness, I tried to roll onto my left side. Ouch. I'm not quite ready for that yet.

I am gradually stepping down on the painkillers. This past week I discontinued the Oxycontin altogether and I have been averaging 4 Percocet/day (day being 24-hour period, in this case). I am still taking the Valium as needed.

I haven't stopped Atarax but I think I will this coming week. My hospital rash is long gone and the itchy-red-spots are pretty much gone as well. Just some residual itching here and there.

MOVEMENT

Movement is generally the same as last week. Now that the ligament pain (or whatever it was) has let up, I am less reluctant to crutch around. I have even left the house for dinner at a restaurant and other adventures. I am good on my crutches (after much practice!) and I am strong from my pre-surgery fitness level, so moving around is not a problem when the ligament is not bothering me. Some chairs are still uncomfortable, but I can find ways to sit to minimize the pain.

Because I seem to be healing so fast, I have been entertaining delusions of perhaps getting off crutches earlier this time. But I think that is probably not going to happen. I have been ahead in the healing game with this PAO because of the joint capsule -- but cut bones are still cut bones and they are going to take as long to heal on the left side as they did on the right. So I'm just going to be in this I-feel-fine-I-just-can't-walk limbo phase for longer this time. Great.

INCISIONS

Both my incisions look great: click the links for the pictures. The one that really matters is the right side, since that will be my permanent scar on that side. On the left side they will open the scar back up again to get the screws out in a few months anyway, so who cares what it looks like now.

MOOD

My mood is good; mostly stressed. I have had to work a lot during this recovery and it is leaving me with less time to read and relax than I had during my recovery this spring. It is also draining. In the evening I feel like I am going to collapse from exhaustion once I log off work. Another reason I am not getting as much reading done this time around. Happily there's the holiday weekend coming up so maybe I can get through a book.

Next week is my 1 month post-op in Boston. How the time flies as I limp along behind it.

Four Months Post-Op

In my last entry six weeks ago, I was just starting to walk again; now I am getting close to 100% with walking. Right now, I'd say I'm at 80% of my pre-dysplasia-pain ability to walk, and probably 100% of my ability to walk just prior to surgery.

As I wrote six weeks ago, at first even going on a half mile walk was exhausting. My leg muscles were in various states of soreness for several weeks, and my cardiovascular endurance needed work after two and a half months of limited activity.

My gait stabilized soon after I began walking. Once I got steady on my feet, I tried to increase my walking bit by bit -- at first just starting with the basic walk to and from the subway on the way to work (a few blocks each way), then little lunch-hour walks that I stretched longer and longer.

Eventually I was able to walk from my apartment in the Financial District across the Brooklyn Bridge to DUMBO, one of my favorite walks and one I was very glad to get back to! My longest walk so far has been a five-mile walk through London the weekend before last -- but I did pay for that with exhaustion and soreness for the rest of the day afterwards, so I haven't repeated the feat since.

I have had pain as I've been increasing my walking. It is hard to explain -- a lot of the time it is clearly muscle pain -- in the quads, glutes, calves, hip muscles -- but once or twice it has felt disturbingly like the old pain: twinges when my hip hit a certain way; that old "blister" feeling. The twinging/shooting only happens when I am *really* spent, like after that 5 mile walk for example. In London, my hip felt great during the whole walk (I would have stopped immediately had it started hurting), but after I came home and had rested on the couch for a while, I got up and felt really stiff with twingy pain in the operated hip on each step. I don't know what that means.

At times I admit I've been concerned that the surgery "didn't work" and the pain was the same old pain I had pre-surgery. But unlike the pre-surgery pain, the twingy pain I have now goes away quickly. The old pain would linger for several days until I'd stayed off my hip long enough for it to fade away.

Other times when my hip has been tired I've sometimes felt an ache, sometimes with the ache reaching down in a stripe down the outside front of my thigh. Of course that stripe could be some inner quad muscle complaining. In fact, I am not sure that the twingy pain isn't muscle related, too. I just don't know. But no matter what the pain, it has usually not lasted more than a few hours and it has always been gone the next morning. I figure it is just all part of building up the strength and endurance of my hip, and to stick with the rule to ease up if it hurts.

Jaime (physical therapist) did give me some exercises and stretches during my May visit, which I was to do daily. I tried to do them every morning and evening but I definitely did not do them that often. The stretching was, and still is, the worst -- my hamstrings were tight anyway before the surgery and now they are just ridiculously tight. It is hard to tell if there is even any progress with the stretching, but I suppose it is good for me no matter what.

I have also ridden the exercise bike sometimes during the past weeks. I haven't swum and I haven't done any anaerobic exercise, but that is just because I am lazy. I have resolved to remedy those deficits in the coming weeks.

As it stands now, I am back to being able to get around in the city at least as well as I did just prior to surgery. I can walk to subways, around the office at work, to errands at lunch hour, in parks on weekends, etc., all without pain (for the most part). I can walk briskly and bustle up and down stairs at typical New York pace. The last couple of nagging range-of-motion problems (not being able to really bend freely over my operated leg to put on a sock, for example) have finally fallen away.

I still have the numb spot on the outside of my thigh, but it comes and goes. Sometimes it feels like it is almost totally gone and then sometimes it comes back a little bit. I guess it is possible there will be some sort of strangeness there for the rest of my life, but no matter; I rarely notice it and am never bothered by it when I do.

I went up to Boston yesterday to see Dr. Millis and the team. (My last visit was back in May, right before my last entry in here.) I got x-rays that looked (to me) exactly like the x-rays from six weeks ago. Screws straight, cracks filled in, etc. Dr. Millis was pleased with my gait, flexion and strength and all seems to be improving according to plan. Weakest links are the right hip flexor and hip abductor muscles. (They probably would have been stronger if I'd been more religious with my PT exercises, hmm?)

I asked Dr. Millis and Jessica (physical therapist) about adding back some activities. Sadly I'm not allowed to start up tennis again, but I'm now allowed to hit against a wall or against a ball machine, so that's a start. Jessica said I needed a month or so before I could start adding any impact on my hip, so "real" tennis is still on hold.

No horseback riding still because it is "too jarring." (I'm surprised they didn't also say "and you could fall off!")

Thankfully I am allowed to start back up with a personal trainer again, so that should help with my motivation to get back in the weight room. I've already set up my first session for this Friday.

Another bit of good news is that I don't have to go back up to Boston until my LPAO pre-op appointment in October! I will communicate with the physical therapists and Dr. Millis via email to give updates on how I'm doing, but basically I'm free to enjoy my summer and fall.

Speaking of LPAO, my left hip is still pain-free despite the increased activity. I haven't had even a twinge from it even during the longer walks. That doesn't affect my decision to put it on the chopping block in November, but it is definitely good news for the enjoyment of my summer.

Venturing Out on the Town

Tuesday's big adventure was going out to dinner at a local restaurant. At the time it was my longest excursion out of the house since I got home from the hospital a week and a half ago.

I was already in a bit more pain than usual before we went, but I thought the pain was more from muscle cramping from sitting in one position all day than from hip ache, so I took a Valium instead of an Oxycodone. Wrong choice. I was irritable, sleepy, uncomfortable in my chair, not very hungry and climbing the pain scale throughout the meal. What a terrible dinner date I was for my poor parents!

When I got home, I got a call from Dr. Millis. He wanted to check up on me at the two-week mark. Obviously he was catching me at a low point pain and mood-wise, but despite how awful I felt during the call, I tried to give him a broader picture of how I have been doing these past weeks and the progresses I have made.

The highlights of what he told me were:

-- if I am to undertake anything adventuresome (ahem, restaurant visit), I should prepare by taking extra pain medication beforehand (in this case one or two Oxycodone instead of one Valium) and not torture myself by going poorly protected, painkiller-wise;

-- he did not seem to be concerned about the amount of pain medication I am still needing (I was concerned because some of my PAO peers seem to reduce and even quit their pain medication so quickly, and I just don't think I can do it that fast, nor do I think I am being wimpy about my pain level);

-- I don't have to worry so much about overdoing the angle or the weight on the operated hip -- it will take more than such small things to do damage to the hip and its healing;

-- any grinding, shifting, popping, or clicking I may have felt are normal the first few weeks (I have felt none of those things.);

-- the dressing can come off any time now, the incision will be healed shut by now;

-- the numb spot will continue to recede.

Today I took the dressing off -- it is still hard to tell what the incision looks like because of the steri-strips. Mostly it looks like a 4.5" long mountain ridge curving down from where the iliac crest sticks out in front. Here is a photo; one of the steri-strips has peeled off already so you can see the actual incision there.

For orientation, the grey fabric is my pants, the top of the incision is where my hip bone would stick out really obviously if I were skinny like a supermodel, and the right side of the photo is the right side of my body. The yellowish tinges are from Betadine solution.

[Note, I've also added a post-surgery x-ray photo here, and going forward photos will be easily accessible in the Quick Links section at left.]

Tonight was another big adventure, attending a three-hour fund-raising event with my parents. Again I was already in a bit more pain than normal beforehand, this time because I'd stepped on the dog while swinging my bad leg off the couch -- the dog obviously jumped up and away, wrenching my leg as she moved. It hurt -- me physically and the dog emotionally.

This time I applied the lessons of Tuesday night and took two Oxycodone beforehand and had extra medication with me. (The fact that the event was a trivia competition and I was able to vigorously compete does prove my point that the Oxycodone does not make me foggy at all.) Although my team did not win, the night turned out well overall. My pain stayed very low until the last hour, when it started to increase and distract me. So clearly I can venture out a bit more, but as Dr. Millis suggested, I should be prepared with extra pain medication to avoid self-torture.